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Michael Henter Foundation

Legendary Guy. Legendary Dream. Saving Lives.

Our Mission

The Michael Henter Foundation is committed to raising awareness, advancing education, and driving research for Marfan syndrome and aortic disease.

 

Founded in 2023 in memory of Michael Henter, our mission is to empower and support individuals and families affected by these life-threatening connective tissue disorders. Guided by the values of compassion, advocacy, education, and progress, we strive to be a force for change, working to improve early diagnosis, expand access to care, and ultimately save lives.

Whether through community events, educational outreach, or fundraising efforts across Iowa and beyond, the Michael Henter Foundation is here to create a lasting impact and build a stronger future for those living with Marfan syndrome and related aortic conditions.

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We work closely with 

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The Marfan Foundation

The Marfan Foundation is a nonprofit organization that saves and improves lives while creating communities for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. 

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Address

PO Box 71293

Clive, IA 50325

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The Michael Henter Foundation is a 501(c)(3) non-profit organization recognized by the IRS.

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